Young Celiac disease activist invited to the White House

Jax Bari, 10, has spoken out about more research and awareness for the millions of Americans who suffer from the autoimmune disorder.
2:14 | 05/31/23

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Transcript for Young Celiac disease activist invited to the White House
>> David: FINALLY TONIGHT HERE, AS YOU KNOW, MAY WAS CELIAC AS YOU KNOW, MAY WAS CELIAC DISEASE AWARENESS MONTH AND DISEASE AWARENESS MONTH AND YOU'LL REMEMBER THE BOY WHO YOU'LL REMEMBER THE BOY WHO WROTE ME A LETTER ABOUT WHAT WROTE ME A LETTER ABOUT WHAT HE'S DONE SINCE HE'S DONE SINCE IS "AMERICA STRONG." IS "AMERICA STRONG." YOU FIRST MET JAX BARI FROM YOU FIRST MET JAX BARI FROM PENN VALLEY, PENNSYLVANIA, RIGHT PENN VALLEY, PENNSYLVANIA, RIGHT HERE TWO YEARS AGO. HERE TWO YEARS AGO. HE WAS JUST EIGHT, READING THE HE WAS JUST EIGHT, READING THE LETTER HE WROTE ME. LETTER HE WROTE ME. >> HI, I'M JAX BARI. >> HI, I'M JAX BARI. LET ME READ MY LETTER. LET ME READ MY LETTER. DAVID MUIR ON DAVID MUIR ON "WORLD NEWS TONIGHT." "WORLD NEWS TONIGHT." >> David: JAX IS WRITING ABOUT >> David: JAX IS WRITING ABOUT CELIAC DISEASE, AN AUTOIMMUNE CELIAC DISEASE, AN AUTOIMMUNE DISORDER TRIGGERED BY EATING DISORDER TRIGGERED BY EATING GLUTEN. GLUTEN. >> DEAR MR. MUIR, WHEN I TURNED >> DEAR MR. MUIR, WHEN I TURNED EIGHT IN MARCH, I WISHED FOR A EIGHT IN MARCH, I WISHED FOR A CURE FOR CELIAC DISEASE. CURE FOR CELIAC DISEASE. >> David: JAX WATCHES THE NEWS >> David: JAX WATCHES THE NEWS AND HE HOPED WE WOULD GET THE AND HE HOPED WE WOULD GET THE WORD OUT. WORD OUT. >> I WATCH YOU EVERY NIGHT WITH >> I WATCH YOU EVERY NIGHT WITH MY DAD. MY DAD. YOU ARE A GREAT STORYTELLER. YOU ARE A GREAT STORYTELLER. AND I HAVE LEARNED A LOT AND I HAVE LEARNED A LOT FROM YOU, FROM YOU, INCLUDING ABOUT THE NIH. INCLUDING ABOUT THE NIH. >> David: THE NATIONAL >> David: THE NATIONAL INSTITUTES OF HEALTH SAYS INSTITUTES OF HEALTH SAYS 2 MILLION AMERICANS HAVE CELIAC 2 MILLION AMERICANS HAVE CELIAC DISEASE. DISEASE. THAT NUMBER COULD BE EVEN THAT NUMBER COULD BE EVEN HIGHER. HIGHER. >> EATING WITHOUT FEAR IS OUR >> EATING WITHOUT FEAR IS OUR HOPE. HOPE. FOOD INSECURITY HAPPENS FOR FOOD INSECURITY HAPPENS FOR CELIACS EVERY DAY. CELIACS EVERY DAY. CAN YOU PLEASE HELP ME TELL THE CAN YOU PLEASE HELP ME TELL THE CELIAC STORY THIS MAY WHICH IS CELIAC STORY THIS MAY WHICH IS CELIAC AWARENESS MONTH? CELIAC AWARENESS MONTH? >> David: AND WHEN OTHER >> David: AND WHEN OTHER CHILDREN LEARNED JAX WAS CHILDREN LEARNED JAX WAS REACHING OUT, THEY DID TOO. REACHING OUT, THEY DID TOO. >> HEY, DAVID. >> HEY, DAVID. >> David: THEY ALSO HAVE CELIAC >> David: THEY ALSO HAVE CELIAC DISEASE. DISEASE. >> I WISH WHEN I WENT TO A PARTY >> I WISH WHEN I WENT TO A PARTY I DIDN'T HAVE TO BRING MY OWN I DIDN'T HAVE TO BRING MY OWN FOOD AND DIDN'T HAVE TO WORRY FOOD AND DIDN'T HAVE TO WORRY ABOUT CROSS-CONTAMINATION. ABOUT CROSS-CONTAMINATION. >> A STRAIGHT GLUTEN-FREE DIET >> A STRAIGHT GLUTEN-FREE DIET IS PRETTY TOUGH. IS PRETTY TOUGH. >> David: JAX AND HIS FAMILY >> David: JAX AND HIS FAMILY WOULD TRAVEL TO CAPITOL HILL WOULD TRAVEL TO CAPITOL HILL ASKING FOR RESEARCH AND FUNDING ASKING FOR RESEARCH AND FUNDING FOR FOOD LABELING. FOR FOOD LABELING. NOW HE MADE IT TO THE NOW HE MADE IT TO THE WHITE HOUSE, INVITED BY WHITE HOUSE, INVITED BY PRESIDENT BIDEN. PRESIDENT BIDEN. SO MANY OF YOU AT HOME MOVED TO SO MANY OF YOU AT HOME MOVED TO HELP, INCLUDING HELP, INCLUDING PENNSYLVANIA STATE PENNSYLVANIA STATE SENATOR AMANDA CAPILETTI WHO SENATOR AMANDA CAPILETTI WHO JUST TODAY ASKED JAX TO HELP HER JUST TODAY ASKED JAX TO HELP HER PRESENT A $100,000 GRANT TO THE PRESENT A $100,000 GRANT TO THE CHILDREN'S HOSPITAL OF CHILDREN'S HOSPITAL OF PHILADELPHIA FOR CELIAC PHILADELPHIA FOR CELIAC RESEARCH. RESEARCH. AND SO BACK HERE TONIGHT. AND SO BACK HERE TONIGHT. >> HI, DAVID. >> HI, DAVID. >> David: HELLO, JAX. >> David: HELLO, JAX. >> I AM CHECKING IN TWO YEARS >> I AM CHECKING IN TWO YEARS LATER NOW, AND I AM 10 YEARS LATER NOW, AND I AM 10 YEARS OLD. OLD. RESEARCHERS ARE WORKING TO FIND RESEARCHERS ARE WORKING TO FIND A TREATMENT AND A CURE, I AM A TREATMENT AND A CURE, I AM WORKING TO LABEL GLUTEN ON ALL WORKING TO LABEL GLUTEN ON ALL PACKAGED FOODS IN THE U.S. JUST PACKAGED FOODS IN THE U.S. JUST LIKE IT IS IN 85 OTHER COUNTRIES LIKE IT IS IN 85 OTHER COUNTRIES WORLDWIDE. WORLDWIDE. >> David: KEEP GOING, JAX.

This transcript has been automatically generated and may not be 100% accurate.

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